More on pain (again)
March 24th 2009 00:04
Yep.
Kleo's talkin bout herself.
On her very own blog.
And if you Don't like it...
Get The Duck Outta Here!
Courtesy of DJ Duckpower.
AHEM!! Now. I was doing good, real good as a matter of fact. After starting on the Tegretol, I felt like SuperGirl. I was doing all kinds of stuff that I hadnt done for ages.
Every now and then, I'd have this....Pressure. In my head. The sort of pressure that really scares the willies out of me, because in the past, when I felt pressure like that, I was going to wake up the next morning throwing up and holding my left eye in the socket. But the pressure did not increase, it did not turn into the blinding, lancing, shocking, aching pain of a nerve attack. I'd wake up with a bit of a throb on the left temple. Thats all. Sure, that bit of throbbing would scare the living crap outta me, because its been there for so long, and only gets worse when I even think about doing anything, but on Tegretol it disappeared by the time I'd fed the horses. My days were pain free. And Doc said "What do you expect - its a damaged nerve!" So Kleo, like a trooper, bloody got into it.
Last time I was there, Doc put me back on the pill. The Doc, and the pharmacist, all agreed, it may not work, because Tegretol is supposed to smash it. But, I needed my period pain under control. See, that period pain, it was so bad, I would happily have traded it in for the worst of all nerve attacks. It used to creep through the small of my back, streak round to claw into my guts, (while still tearing at my spine) and if all that wasnt bad enough, next would come the nausea and the feel that every single cell in my body is trying to push. The only way to stop the pain was to obey. And sometimes that didnt even work. So for the 5 to 6 days the period lasted little Kleo would be gagging, flipping the heat bag from back to gut moaning desperately in full on agony. I reminded Doc - last time I complained about period pain (bout a year ago) you thought I was miscarrying. 'No I didnt' says Doc, 'No way' but she checks her records. 'oh crap. So I did!' She diagnoses endometriosis in the same way as Dr House - no test, it takes to long. Treat first! Yay! So they give me the pill. Everyone warns me it probably wont work. I dont really want to go on it. I dont like the damn thing. But I fill my prescription and off we go.
When I was on my little QLD holiday, I got a sore neck. Momma J just said pop some Advil, you'll be fine. And I was. But I cant go taking painkillers everyday - Tegretol doesnt like it. Add to that - I know my body. It metabolizes painkillers very quickly due to long years of abusing them. I have to go as easy on them as possible, so that when Im 40 and I really need them, I can jack up the dose.
In my first week of coming home my neck wasnt sore. I dont remember it being sore. That visit with the Doc was my first week back. And it wasnt sore. I know I did a lot of work around the house - cleaning animal enclosures that hadnt been touched since i left, working the horse, cleaning out the shed, moving the wood pile and chopping some wood, which I really enjoyed. But I do not, for one moment, remember my neck being sore. Even after chopping some green wood that made my arms spring back up from the shock. And yeah, I smashed that bastard. I hate it when wood talks wise to me. I dont put up with that shit. It chops. End conversation.
But on Tuesday my shoulder started to hurt. Theres a massive knot that feels like its in the bone that joins the shoulder blade to collar bone. Of course, it could be a tendon so wicked tight that it feels like a bone. If it is a bone, I'm worrying Ive cracked it somehow. But there is no bone pain. No grinding.
The pain started streaking up my neck, and affecting my (oh God No) FACE. The trigeminal nerve starts this jiggling. Im like No Shut Up! Its not you thats hurt! Just stay the hell out of it! Start wacking on the heat pack. Trying to sleep turned away from it turned towards it, what, what will make it happy?
Wednsday I have my interview. I feel ok, cos Im filled to the brim with advil, rhinocort, ventolin, vitamin C and dont forget good ol Tegretol. Im waiting for the PMS to kick in, cos Ive got my new pills to start. Should be any day. And that aint good. Cos when its late, it means its cooking up something extra nasty for me.
Thursday drags by. I'm waiting. I know its coming.
Friday I feel great. No PMS yet. So I stop worrying about it. My shoulder feels ok - I completely forget that I smashed the same combination of drugs into myself first thing in the morning that I did on Wednsday - and when I get home from an emergency shopping trip, I do 40 minutes hard cardio. Yep. You read it right. Push ups, weights and all. I remember quite clearly, thinking, 'why, I've been such a baby! My shoulder doesnt hurt at all!'
I fight with the washing machine, get her going, and do EVERYONE's washing, not just my own. Then I do the floors - sweeping, mopping, vacuuming. Then empty and wash out the bins. Work the Zayfir. Brush Mags. And Im still full of beans and looking for more to do when Kman gets home.
He decides to do the shopping, even though I want to go.
How lucky was that?
While they are out, I start to feel a little....Seedy. Nauseus. Sweaty. My shoulder starts to throb right up into my face. Pressure builds on BOTH temples like Im going to pop my whole head like a pimple.
And then, I realize, its time to start The Pill. It's come.
At first I think, 'How strange. No pain'
And then, added to the shoulder, added to the head, comes a pain like I've never known. I feel like I cant see. Im covered in sweat. When Kman sees me, he cries in alarm, 'are you ok? You're grey!' Hmmmm......I doubt I even manage that much speach. From the blades to the lower, my back is being ripped to shreds by bear claws. My guts are contracted and screaming and as usual, its like the left side - where my ovarian cyst is - feels like its been blown open by a filthy bullet.
No wait. That would mean a cessation of pressure.
Over the weekend, as I top up on my new oestrogen and progesterone, the period pain starts to dissapear. Im human again. Hurrah! Suck that endometriosis! Ha!
My head feels ok, except for the weird pressure.....Which i will be definitely getting up the Doc about tomorrow. She said she was going to research other drugs for me. I doubt she has. But she'd better. Cos Im not sure about this Tegretol. Not sure at all!
But. Most importantly.
My shoulder is getting worse.
I've tried heat packs. I've tried baths. I've tried getting kman to rub it, gently, or rub it hard. It felt better for a while, but was killing like knives again in the morning. I've tried slowly and lightly stretching it, I've tried resting it. Nothing works. IT JUST KEEPS GETTING WORSE!!
I do not know any sort of muscle sprain that would continue to get worse like this.
The only thing that works...*groan* Is Advil. And I really dont want to take too much Advil. This morning I said nup. Not doing it. No Advil. I shall suffer. I MUST be getting better. At least a little. Like a horse - when the pain is there, they use the limb carefully. When you fill them with painkiller, they rip roar around the paddock and tear it to shreds. So. No Advil for Kleo.
I think I lasted two hours before, gasping, sweating, crawling, I made it to the drawer, fumbled it open, and swallowed the little blue pill. Only one! See, Im trying to be good.....
But its back to the Doc I go....Hi-ho...Hi-ho.....
Kleo's talkin bout herself.
On her very own blog.
And if you Don't like it...
Get The Duck Outta Here!
Courtesy of DJ Duckpower.
AHEM!! Now. I was doing good, real good as a matter of fact. After starting on the Tegretol, I felt like SuperGirl. I was doing all kinds of stuff that I hadnt done for ages.
Every now and then, I'd have this....Pressure. In my head. The sort of pressure that really scares the willies out of me, because in the past, when I felt pressure like that, I was going to wake up the next morning throwing up and holding my left eye in the socket. But the pressure did not increase, it did not turn into the blinding, lancing, shocking, aching pain of a nerve attack. I'd wake up with a bit of a throb on the left temple. Thats all. Sure, that bit of throbbing would scare the living crap outta me, because its been there for so long, and only gets worse when I even think about doing anything, but on Tegretol it disappeared by the time I'd fed the horses. My days were pain free. And Doc said "What do you expect - its a damaged nerve!" So Kleo, like a trooper, bloody got into it.
Last time I was there, Doc put me back on the pill. The Doc, and the pharmacist, all agreed, it may not work, because Tegretol is supposed to smash it. But, I needed my period pain under control. See, that period pain, it was so bad, I would happily have traded it in for the worst of all nerve attacks. It used to creep through the small of my back, streak round to claw into my guts, (while still tearing at my spine) and if all that wasnt bad enough, next would come the nausea and the feel that every single cell in my body is trying to push. The only way to stop the pain was to obey. And sometimes that didnt even work. So for the 5 to 6 days the period lasted little Kleo would be gagging, flipping the heat bag from back to gut moaning desperately in full on agony. I reminded Doc - last time I complained about period pain (bout a year ago) you thought I was miscarrying. 'No I didnt' says Doc, 'No way' but she checks her records. 'oh crap. So I did!' She diagnoses endometriosis in the same way as Dr House - no test, it takes to long. Treat first! Yay! So they give me the pill. Everyone warns me it probably wont work. I dont really want to go on it. I dont like the damn thing. But I fill my prescription and off we go.
When I was on my little QLD holiday, I got a sore neck. Momma J just said pop some Advil, you'll be fine. And I was. But I cant go taking painkillers everyday - Tegretol doesnt like it. Add to that - I know my body. It metabolizes painkillers very quickly due to long years of abusing them. I have to go as easy on them as possible, so that when Im 40 and I really need them, I can jack up the dose.
In my first week of coming home my neck wasnt sore. I dont remember it being sore. That visit with the Doc was my first week back. And it wasnt sore. I know I did a lot of work around the house - cleaning animal enclosures that hadnt been touched since i left, working the horse, cleaning out the shed, moving the wood pile and chopping some wood, which I really enjoyed. But I do not, for one moment, remember my neck being sore. Even after chopping some green wood that made my arms spring back up from the shock. And yeah, I smashed that bastard. I hate it when wood talks wise to me. I dont put up with that shit. It chops. End conversation.
But on Tuesday my shoulder started to hurt. Theres a massive knot that feels like its in the bone that joins the shoulder blade to collar bone. Of course, it could be a tendon so wicked tight that it feels like a bone. If it is a bone, I'm worrying Ive cracked it somehow. But there is no bone pain. No grinding.
The pain started streaking up my neck, and affecting my (oh God No) FACE. The trigeminal nerve starts this jiggling. Im like No Shut Up! Its not you thats hurt! Just stay the hell out of it! Start wacking on the heat pack. Trying to sleep turned away from it turned towards it, what, what will make it happy?
Wednsday I have my interview. I feel ok, cos Im filled to the brim with advil, rhinocort, ventolin, vitamin C and dont forget good ol Tegretol. Im waiting for the PMS to kick in, cos Ive got my new pills to start. Should be any day. And that aint good. Cos when its late, it means its cooking up something extra nasty for me.
Thursday drags by. I'm waiting. I know its coming.
Friday I feel great. No PMS yet. So I stop worrying about it. My shoulder feels ok - I completely forget that I smashed the same combination of drugs into myself first thing in the morning that I did on Wednsday - and when I get home from an emergency shopping trip, I do 40 minutes hard cardio. Yep. You read it right. Push ups, weights and all. I remember quite clearly, thinking, 'why, I've been such a baby! My shoulder doesnt hurt at all!'
I fight with the washing machine, get her going, and do EVERYONE's washing, not just my own. Then I do the floors - sweeping, mopping, vacuuming. Then empty and wash out the bins. Work the Zayfir. Brush Mags. And Im still full of beans and looking for more to do when Kman gets home.
He decides to do the shopping, even though I want to go.
How lucky was that?
While they are out, I start to feel a little....Seedy. Nauseus. Sweaty. My shoulder starts to throb right up into my face. Pressure builds on BOTH temples like Im going to pop my whole head like a pimple.
And then, I realize, its time to start The Pill. It's come.
At first I think, 'How strange. No pain'
And then, added to the shoulder, added to the head, comes a pain like I've never known. I feel like I cant see. Im covered in sweat. When Kman sees me, he cries in alarm, 'are you ok? You're grey!' Hmmmm......I doubt I even manage that much speach. From the blades to the lower, my back is being ripped to shreds by bear claws. My guts are contracted and screaming and as usual, its like the left side - where my ovarian cyst is - feels like its been blown open by a filthy bullet.
No wait. That would mean a cessation of pressure.
Over the weekend, as I top up on my new oestrogen and progesterone, the period pain starts to dissapear. Im human again. Hurrah! Suck that endometriosis! Ha!
My head feels ok, except for the weird pressure.....Which i will be definitely getting up the Doc about tomorrow. She said she was going to research other drugs for me. I doubt she has. But she'd better. Cos Im not sure about this Tegretol. Not sure at all!
But. Most importantly.
My shoulder is getting worse.
I've tried heat packs. I've tried baths. I've tried getting kman to rub it, gently, or rub it hard. It felt better for a while, but was killing like knives again in the morning. I've tried slowly and lightly stretching it, I've tried resting it. Nothing works. IT JUST KEEPS GETTING WORSE!!
I do not know any sort of muscle sprain that would continue to get worse like this.
The only thing that works...*groan* Is Advil. And I really dont want to take too much Advil. This morning I said nup. Not doing it. No Advil. I shall suffer. I MUST be getting better. At least a little. Like a horse - when the pain is there, they use the limb carefully. When you fill them with painkiller, they rip roar around the paddock and tear it to shreds. So. No Advil for Kleo.
I think I lasted two hours before, gasping, sweating, crawling, I made it to the drawer, fumbled it open, and swallowed the little blue pill. Only one! See, Im trying to be good.....
But its back to the Doc I go....Hi-ho...Hi-ho.....
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Comment by Morgan Bell
Science News
Deep Pencil
Business News
Movie Train
Artist Quirk
geez endometriosis AND an ovarian cyst . . . you cant catch a break with your health can you?
a friend of mine, who is my age (27) is dead keen on getting a hysterectomy, shes on a waiting list scheduled to get it this year - mostly because she is so fed up with irregular (constant) periods and debilitating period pain . . . she has already had all the kids she wants and quite literally said to the doctor "take my womb, rip it out, im sick of it and i dont need it anymore"
valium is extremely useful for muscle cramping, and make sure you are getting enough zinc and magnesium in your diet or with supplements as they also reduce cramping and spasms
i wish i could say more to help you!
oh and i know its a bullshit doctor thing to say but never dismiss the value of a big drink of water and a good lie down . . . i advocate rest for almost any illness
Comment by Kleonaptra
Kalikapsychosis
Yeah, I do drink lots of water anyway.
When the cysts were diagnosed, it was about 3 years ago, before I started seeing this doc Im with now. She said they probably arent cysts, they're endometriosis ulcers. I agree.
The thing is, a hysterectomy may not end it. Endometrium cells can escape from the uterus and attach themselves elsewhere - its why women who suffer it feel pain all over the place and not just in the womb. Sometimes menopause is the only thing that will end it and sometimes, not even then!
But I can relate to wanting it ripped out. There is literally NOTHING like that pain. I usually manage to lay down before I pass out but it always knocks you out one way or the other.
Mersyndol is my favourite thing, and now Im not on Tegretol, I can take some. Im not big on fruit so I do usually have a handful of supplements once a day.
Good to find someone else who's fascinated...Believe me, this is a House case alright!