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Kalikapsychosis - "Perfection is what its about. When you can feel, the perfection, of creation. The beauty of physics, the wonder of mathematics all the elation of action, and reaction, and that is the kind of perfection that I want to be connected to" - Sam, hooked into the data stream

Medical Round up

October 29th 2011 06:15
For anyone who has been following my medical posts you will be pleased to know they have been moved into their own category.

Heres whats wrong with me, to date. And let me tell you, we know a lot more than we used to!

Chronic Migraine, which may or may not involve aura. The nuero doesnt know. And Im not about to pay $250 for a very wordy 'I dont know'.

Trigeminal nueralga. Even though the nuero said no, both my ENT and GP are convinced I have it. TGN stays on the list.

Chronic sinusitis caused by a degeneration of the sinus cavity itself. I now take a steroid spray daily and pound more clarityne than ever before.

TMJ. Yep, left jaw. Thats FOUR conditions in the same place now. The pain in my jaw was so bad I thought I wouldnt be able to go back to work. I doubled up on Endep, which is just the magic drug for me. God I love it. Ive had some emotional issues bhut have pushed through, I need the 25mg too much. I am having a CT and an X ray next week, the doc thinks I might have...Drumroll....A dislocated jaw! The pains all wrong for TMJ. She said, when feeling my face, "K, why do you have to be so weird?"

Vitiligio. Not noticeable over winter, blotches appear upon the slightest suntan.

Endometriosis, which was supposed to be so severe, I couldnt get pregnant. Ha! Thought they would know better by now. Since I had the baby, it has not played up. During pregnancy my endo lesions caused some trouble, but since birth, its been quiet.

Arthritis. Always fun.

Oooh dermatitis. Cant get rid of it. Look like a leper.

Heart murmur which worsened during pregnancy. Having some flutters. Had borderline blood pressure at the end which has contributed to chest pain.

IBS. Like the arthritis, always fun. Just to keep it interesting.

I now function on a careful concoction of ibuprofen and paracetamol and vitamin supplements. I like herbal muscle relaxants for muscle spasams. I cannot ever forget my precious endep. The pain is always there, but manageable, and attacks are rare.

Like I said, we know more than we used to!
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Updating the pregnancy thing

September 23rd 2010 02:37
Well, its 12 and a half weeks now and I can safely say I'm still in complete denial. The ultrasound the other day literally blew my mind - I didnt expect to see much of anything - but there was head, legs, hands, spine, brain....Wriggling around and sucking its thumb (omigod how freaking adorable!) We have named the incoming offspring Wriggling Weazel for now because I was in there for 40 minutes, no joke, just to get all the correct measurements. Little Wriggler just would not stop moving.

Despite all of that, without a little x ray window on the tummy, it's a little hard to get on with ones everday duties while thinking that you have a person inside you. So for the most part I dont really think about it. Women screaming "DONT LIFT THAT!" are really, really starting to piss me off because I am seriously not disabled. If they want to help out the pregnant lady then they could finish my floors for me at the end of the night cos its that final squigee thats really tiring me out.

Another stupid statement was, "Well, I guess you wont be working nights anymore" My reply was a puzzled..."Why?" They were equally puzzled. "Well. You know. You're pregnant. And tired and stuff"

Ok yes, pregnant, and tired and stuff. But that does not change the fact that since I myself was a baby I've been a night owl. Very difficult for my early bird mum. One of the rasons this job works so well for me is because I work nights and only nights. No early mornings, no busy days. I'm still alert when I get home and happily stay up a few hours and catch up my sleep in the daylight hours, when its always been easier for me to sleep.

Right now the biggest problem for me is that for the last 2 years I have functioned on a drawer full of drugs - clarityne, clarinase and all their decongestant brothers and sisters (including nasal sprays), anti inflammatories, muscle relaxers of herbal, prescription and over the counter varieties, and painkillers, lots and lots of painkillers. Early this year my dear Doc and I went on a rampage to finally discover the cause of my pain and it was discovered I have serious sinus issues requiring surgery to fix it.

Then I got pregnant.

At first, with pregnancy hormones flooding my body, I was fine. No headaches and no sinus issues to speak of. I thought all would continue as such. Last weeks my old headaches came back - the ones that wrap around my skull and stab into my left eye, ear and cheek. They dont go away when Im sleeping, and are still there when I wake. Let me tell you, thats really depressing. So far, this is what works.

Massage face before I get out of bed. Wash face vigourosly. Have breakfast and a warm drink, only then have some panadol. Stretch all back and neck muscles. Get moving - go for a walk or do some housework. So far this is working ok but sometimes even all that isnt enough to settle it down. I dont know what I'll do about it and need to discuss with doc next week.

And that brings me to another thing - yesterday I was mighty pissed off. I called my local hospital, as my doc directed me to do, and they informed me that I had to be refrred by a local obsterician to be admitted as a public patient. I mean, are you kidding me? I already have a doc, and I sure as hell dont need another one! Im going to inquire at my other local hospital, because I sure as hell dont want to get used to a new doc right now.

I threw down the baby book a friend lent me in disgust because I seem to be doing everything backwards. I found it quite hilarious that she describes her book as 'different to all the other pretentious tomes' when to me thats exactly how she sounded.

Mothers everywhere will think Im a fool but I cant wait to get a bit bigger. Its because I work in a store full of arsehole customers. I'm a good worker, I check for customers every few seconds while Im doing other things. Someone can walk up in the moment after you've looked over you're shoulder, and when you make eye contact a second or two later, they are already looking impatient, giving you that look that says, "my god Ive been here for AGES" and you know they havnt. Because you just checked. So it'll be nice to turn my bulk slowly about and say, "I'm on my way mate" and see their face fall as they realize what an arsehole they've been.

Why does it take pregnancy for that to happen?
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Sick day

August 10th 2010 04:16
Well, its officially my first pregnancy sick day. It was so spur of the moment. My lunch is made, uniform clean, all prepared.....And I woke up with my ear and temple throbbing and some nausea and when I realized I couldnt just take a handfull of pills and soldier on I picked up the phone. I waited anxiously for mega bitch boss to pick up and skreetch at me but mercifully, she was not there. They said ok and I hung up to sleep for another 6 hours.

My appetite is out of control, If I dont eat, immediately, when hungry, I get sick and tired. Even though Im only roughly seven weeks, Im growing.

I had an early detection. I got pregnant straight off the pill, and mum was a twin. You know where this is going right?

Im having an ultrasound to check in a few days. With all my spooky scary Kleo powers I tell ya, I believe it is two. Boy and Girl to be specific. Im often wrong, so I may not be right. Only the ultrasound wand and a full bladder shall tell.....Ouch!

Im reading 'Up The Duff' by Kaz Cooke, and though its Frigging HILARIOUS I have to say she falls prey to the same crap every other informative piece does. When you have the question - "will this affect my pregnancy" whatever 'THIS' may be, everyone, and everyone, says "definitely probably not"

I know this linguo. Listened to it for years over my migraine and sinus problems. It translates to - "we have no clue. None. You could go go dance on the ceiling and still be fine for all WE know"

All publications are quick to say dont drink and smoke. But wander through any of the housing commision areas of sydney and you'll see that one is a big lie. Not only do houso girls smoke and drink, they have tribes, HORDES of children. Healthy enough to get into crime as early as 13.

They say rest up, but exercise. They say eat, but dont overeat - while helpfully supplying how many extra serves of protien/calcium you should be eating. They say go to work, but dont work too hard. I tell ya....Ive said it before, but if we had this much confusion 100 years ago, the human race would be EXTINCT.

Its hit me that no sane person in their right mind in this modern society actually chooses to have kids. Its not like years ago when there was little contraception and it was just the 'thing to do'. There was no worry, no consequence, babies were as much apart of death as life. Now we're getting closer to knowing about death, but we have much less life. Once babies would be getting born in a household every few months, now we 'think about it' which we never did before.

See, we 'think about it' very maturely. We think about money, space, school, clothes....We try to imagine ourselves as parents and how we'll do at it. But then, one day, you stop thinking, You just do it. And its not until you're actually pregnant that all that other stuff returns and you go 'Oh..CHRIST". Ive decided that no sane intelligent person is capable of deciding, because its too hard. Thats why we have so many 'accidents' or doubt our sanity the moment we get pregnant. I sure did.

I have days where Im not happy, where Im scared. Im not sure how post natal depression works when you already had prenatal depression.....And I cant take my endep once I start breastfeeding. So Im going to be in some wicked nasty pain then.

But I feel them, I know them. They've spoken to me for years. Im so happy to have them with me, to know they are coming to live in the world. They waited a long time for me, and now, ready or not, we're all going to be together.
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I havnt felt like talking about this lately, because quite frankly, its depressing the crap out of me.

My last medical post talked about the ENT and the drugs he gave me. I've since been back to him and he told me - no more drugs, despite your improvement. The only option left is surgery, and before he goes ahead and does it, he wants me checked out by the nuero and he wants another sinus scan. Sinus scan is no trouble, but the nuero is a big $250 hit that I really cant afford. Even still, Ive made the appiontment for next week. Looks like no food shopping this week


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Perfunctory Post

April 28th 2010 02:02
Yeah, she's been a lackluster blog lately.

Why? Ive been working. Ive been in pain. Ive been busy


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My New Specialist

April 19th 2010 02:39
Well, anyone who's a regular reader on my blog will know that my health issues are ongoing. I've been plagued by chronic migraine and a chronic sinus problem that has thus far simply been called chronic sinusitis, an evolution of the everyday hayfever.

I saw my ENT for the first time on Thurs. After hearing about the migraine issues, he wasnt convinced I had a sinus problem. He said lots of people get sent to him for pain that doesnt necessarily involve the sinus


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More On Endep

December 7th 2009 03:33
I have been on Endep now since the end of May, roughly seven months. Last Monday, Dear Doc decided to more than double the dose. I had some 10mgs left - she said take 2 a night, making 20mg, and when those run out, start the new 25mgs.

See, you gotta understand. I know, you cant, Ive explained it to enough people now that I know, its impossible. You cant understand chronic crippling pain unless you HAVE chronic crippling pain. You cant understand cycling through drugs unless you've done it, but here we go


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No more little red pill

June 11th 2009 00:27
I have decided to stop taking the deralin.

Why? Because I just cant take the cold any more


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Sick

June 3rd 2009 02:07
Dont worry, its not swine flu. Well, actually, it could be. I havnt bothered to go to a doctor. My doc is about an hour away, and trekking to see her while disorientated and spewing mucus is less than fun. And Im not going to a local medical centre so they can hurl antibiotics at me. Well, wait a minute. Maybe I should, get the most out of medicare. I hear its disappearing. And we'll be just like America. Half our population will die. That could be good, except I'll be in that half. I'll never afford health care.

It started last monday, no, not last monday, the one before that. Bitch at work kept telling everyone - "Ive got whooping cough. Im trying not to breathe on you" While breathing right into my face. Bitch. I woke up on tuesday with a wicked cough. But it didnt go any further. Great


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Endep

May 28th 2009 01:47
I forgot to mention, in all the excitement, that I Did, Finally, manage to start my new meds.

I started last Thursday, when I knew Id have three days off in which to get used to it. After reading about the side effects, I fully expected to be drowsy and sleepy, and have my guts gum up like they were full of tar


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What a pain in the head....

May 6th 2009 02:29
Its back.

The ability of my body to completely degenerate has amazed me. I am once again the furtive, agressive person I was before the Tegretol. Every noise feels like a good 2 inch drill bit pounding through my ears and into my skull, so even a soft spoken, "How are you?" is bound to end in "SHUT THE HELL UP!" All light is an affront to me, the standard, usual occurances of living are painful and unwelcome. And I cant get rid of it


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$250 for nothing....?

April 22nd 2009 22:32
kleo's going to start whinging again. So if you dont like it, get the duck outta here.

I should have known the day was going to go badly when I didnt leave myself enough time to leave the house. Im sure, its complex enough for most people to shut doors and windows without herding ducks, moving bird cages and tripping over cats


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Another Neuro

April 22nd 2009 00:31
This will be my fourth.

First was Dr Rail. He encouraged me to look after my neck after a barrage of brain wave tests to prove I did not have brain damage. Told me keep up the migraine treatments. Make an effort. Change your life! It didnt work


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Slothful

April 20th 2009 01:07
I have been terribly so...And Im trying to make excuses for it. But they dont work, because Im only giving them to myself, and I dont believe them. So. That creates some problems.

Work havnt called. Thats the thing with being casual. This shit happens. Where you enter a horrid vacuum and you start thinking, its been so long since they called me, maybe they fired me and forgot to tell me? I bloody hope not. I neglected my centrelink duties last week. They'll be happy Im working, ecstatic actually. But I should have told them instead of just spacing it. Maybe I'll ring them. Maybe I'll ring work. But I know what a pushy bitch I can be. A simple call to find out about shifts can come out very personal if Im not careful. And we were warned, that our hours would be in very short supply until we move to our store. So with that warning in mind, do I really need to call? I know Im a star - I dont actually need anymore training. Henceforth, they should focus on the others for a bit. I just wish I had my damn Rudd money. It would make me feel secure


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